Tag: Albinism

  • People with albinism relive battle with emotional trauma engaging in sports

    People with albinism relive battle with emotional trauma engaging in sports

    •Victims go solo to keep fit after being ostracized by mates, teachers, others
    •Blame disease burden among members on lack of physical activities

    In Tanzania, Kenya, Mali and some other African countries, People With Albinism (PWAs) are encouraged to participate in competitive sports and even represent their countries in international competitions. The reverse is the case in Nigeria. Here, PWAs are treated as sub-humans and ostracized from sports, leaving indelible scars in the hearts of many. Sports authorities are equally culpable as they haven’t deemed it necessary to provide an enabling environment for PWAs to engage and excel in sports. INNOCENT DURU reports.

    Chika Umeh, a PWA picked interest in football at a tender age. He played the round leather game all through his secondary school days but the danger of exposing his skin to sunlight brought his interest in soccer to an abrupt end.

    “I dropped out of that and got interested in basketball when I got to a tertiary institution,” he said.

    “The advantage I had playing basketball was because it was played in the evenings.”

    While Chika and numerous other PWAs in Nigeria quit sporting activities because of the effects of the sun on their skin, PWAs in some other countries are being provided an enabling environment and assisted to circumvent the challenge that the sun poses to their health.

    In Tanzania, Kenya, and Eswatini, formerly Swaziland, PWAs have football clubs engaging in competitive games. In Mali, Zambia, and other African nations, PWAs have produced great athletes who have represented their nations at international competitions and won laurels.

    While PWAs in those smaller African nations are making successes, Chika, a multi- skilled sportsman   battled emotional trauma fitting into his teams.

    Recounting his ordeal, Chika said: “there is this kind of look that they usually give. It’s kind of a discrimination, isn’t it?,” he asked rhetorically and continued: “when they look at you, they suggest you are not fit for the game; you don’t belong here kind of look. Though sometimes they let me play, but when it comes to competitions, they just feel I won’t match up.

    “Maybe they feel it might be too stressful for me or that I might not be able to withstand the pressure of the opposing team.

    “They will tell you, oh no, you can’t do this because of your complexion.  You don’t need this stress. It’s sometimes hurtful, but you just have to let go of it.” 

    While his mates trivialize his ability, Chika said “right in my own mind, I do believe I would live above their limitations. I always have this feeling that I can do it. But they always say, okay, ‘no, you will get in later’ but it never came.”

    Going by his experience, Chika said he often felt sidelined, and being left out by society. 

    “Sometimes when I see that a game is in the afternoon when it is hot, I feel it is   understandable to be left out. But sometimes when it’s in the evening or early in the morning when I won’t be affected by the rays of the sun and they come up with such attitudes, I feel sidelined, and get to wonder if there was something else to it.

    “I would always feel bad, but wouldn’t betray emotions. I just let it be.”

    “I would just come out, you know, do my own practices when it’s time to practice. At times I practiced with others when it’s convenient, but for the main games, I just wouldn’t put in too much hope, especially when I know that they may not give me a chance.”

    After being emotionally brutalized and ostracized from competitive outdoor games, “I resorted to engaging in indoor games.

    “At a point, I played chess, and I did taekwondo for a start.  I didn’t proceed to the advanced level. It’s just a personal love for it that got me into it.”

    Chika still does taekwondo. “I do personal training. My coaches really encouraged me but I didn’t have much time to take it to the next level. Something else engaged me, so I didn’t continue that anymore.”

    Had he been given the necessary support and encouragement, Chika said he would have thought of doing it on a much larger scale.

    “I just do it personally now,” he said.

    Like Chika, Akinsola Oluwayemisi, a 29-year-old PWA also picked interest in sports at a very tender age.

    “I was participating in sporting activities when I was in primary school. I was taking part in relay races back then and good at what I was doing. I also liked volleyball but all the skills have vanished.”

    Oluwayemisi said she stopped involvement in sporting activities after seeing a doctor who “advised me against exposing my body to sun.

    “I didn’t feel good quitting because I really love sports. I felt really bad but there was nothing I could do.”

    In spite of the setback the doctor’s advice caused her, Oluwayemisi has refused to give up on sports. “I no longer do exercises with other people but I do that alone in the house,”she said.

    PWA feels separated, neglected not engaging in competitive sports

    One may not appreciate how unhappy PWAs feel not engaging in competitive sports until there is an encounter with them. Our meeting with   the coordinator, Albinism Association of Nigeria, Somolu/Bariga LCDA, Abegunde Elijah, reveals this much.

    “I feel separated, I feel neglected and not really good about it,” he said.

    Before now, I took part in sports in the morning.In school, I was involved in swimming.  I stopped taking part in regular sporting activities because of the sun.”

    Elijah has not allowed the verdict of nature to extinguish his love for sports. To keep fit and maintain a healthy lifestyle, he said: | “I jog every morning now.”

    In spite of the existence of disability laws that frown at any form of discrimination against people living with disabilities, Elijah expressed worries that the society has continued to discourage even the younger PWAs from engaging in sports.

    His words: “The children face stigmatization just the same way we did when we were growing up.

    “They are discriminated against in sports. They laugh at them saying that they can’t see.

    “During sporting activities, they will just be mocking them saying they won’t see the ball.  They can even hide the ball and tell a child with albinism to start looking for it. That demoralizes and discourages such a child from engaging in sports.”

    PWA quits sports after changing school

    A female PWA, Omobola Kalejaiye said her interest in sports was dashed after she moved to a new school where no consideration was given about   her nature when fixing sporting events.

    She said: “I was into running when I was younger. When I was in primary school, I was jumping too. I stopped after I changed my school. In the new school that I went to, there was nothing like jumping. All they had was volleyball, basketball and football.

    “I couldn’t join them because they were doing all that under the sun. I can’t stay under the sun and be running or participating in football and basketball.

    “I will need a very cool place. Secondly, the person that will anchor a game will be far from me and I may not see when he is giving me any instruction. If not for the danger of exposing my skin to the sun, I would have been participating in all those games.”

    PWAs must be on top of their game – Lagos PWA Chair Tolani Ojuri

    Lagos PWA Chairman, Tolani Ojuri, engages in sports and enjoins members to follow suit with warning that they should avoid exposure to the sun.

    “We encourage our members to take part in indoor games for their physical health. We also encourage them to be on top of their game and as much as possible to aid their metabolism.”

    Ojuri said he picked up cycling from childhood.  “It was just for me a hobby. I do it almost every other day, but I make sure it’s regular on weekends.”

    Aside from cycling, the PWA chair said he probably would have taken to jogging. “I have not really been into competitive sports all my life but if I were to choose one, I will say probably athletics.

    I can’t do that under the sun even if I am one.”

    Ojuri dismissed fears by some parents that their children with albinism are too fragile to engage in sports.

    “Yeah, some parents express some level of fear or concern for their children. But when they come into the cluster, we make them realize that their child is just like any other child and they can do virtually everything that the other children do as long as they are kept away from the sun.  And really, as the child keeps growing, they truly realize that there’s nothing fragile about the child.”

    Calls for, enabling environment, sporting competitions among PWAs

    Respondents called on the sports ministry to provide an enabling environment and organize sporting competitions for PWAs to boost their physical fitness and reduce disease burdens among them.

    Omobola urged the authorities to create places where people with albinism could engage in sporting activities. “If I have a covered place I will participate in sports. The only issue is that the place must not be too bright.  It must be moderately lit.”

    When people with albinism get involved in sporting activities, she said, “our spirit will be lifted. When that begins, people will laugh and ask why they are engaging in sporting activities but it doesn’t matter in as much as you know what you are doing. Once you are willing to do that, you will not listen to any side talk.

    “If there is an avenue for people like us to participate in sports, I believe that we will have many people who will be interested in it.  Even the younger ones that are coming now will have been trained on how to participate in those games.”

    Speaking in the same vein, Elijah said: “If I have a place that is covered, I will gladly engage in sporting activities.  I love table tennis, swimming, and jogging. I can play football with a few people.  But the fact that we don’t have any place we can take part without being exposed to the sun, many of us don’t participate in games.

    As the coordinator or people with albinism in Somolu, Bariga, I can tell you that most of our people don’t engage in sporting activities. This is why most of us have infections. Many of our members are battling with cancer. If we are engaging in sporting activities, the health challenges will drastically reduce.”

    He appealed to government to make provisions “for us to have our own sports centre in places like Shomolu LGA and Bariga LCDA as well. We will be very grateful to have that. We are trying everything possible to see how they can engage in sporting activities.  It has not been easy but we are making efforts to get this done. We need support from the government to get this done.”

    Twenty nine year old Oluwayemisi said she is still burning with the passion of engaging in sporting activities.

     She said: “If I get a place that is covered, I mean a place that shields me from the sun, I will gladly go back to taking part in sports.”

    Chika said: “If there are competitions among people with albinism, it will encourage many of our people to participate in sports. There are so many of us who are interested sports.  Many of us are passionate about sports. Most times when we try to engage, some of us just look away from the stigmatization.

    “If we are given a chance, even if they are just indoor games, many will participate.

    “We have so many of us going into the entertainment industry.  Some are doing well, so if given a chance in sports, why not? We will do well.  What they could only do is maybe set some standard, like it’s done in the other person. If they set standards, it will motivate many PWAs to want to engage in sports.”

    Lending his voice to pleas of his members, the PWA chairman, Ojuri said authorities should actively engage persons with albinism with necessary support when it comes to sports.

     “If you are going to have indoor cycling, the space must be covered, if you are having indoor tracks, the space must covered. They must be shielded from the rays of the sun, especially at the peak of the day.”

    African countries where PWAs are excelling in sports

    In many African countries, PWAs have long put the challenges of sunlight and failure of sports administrators behind them.

    They are making successes and grabbing global media attention.

    In Tanzania exists a football team known as Albino United FC. It was founded in 2008.

    The team was formed by young men with albinism to challenge dangerous superstitions and discrimination in Tanzania, where they are often targeted for body parts used in witchcraft. They gained international attention through documentaries and support from organizations like Everton FC, using football to promote acceptance and show they are normal members of society, despite facing threats and hostility in some areas.

    PWAs in Kenyan are also   making strides through initiatives like the Black Albinism Football Club (BAFC). Like in Tanzania, they are using football for inclusion and awareness against stigma, with players facing challenges like sun sensitivity and vision impairment but finding empowerment.

    Eswatini (formerly Swaziland) also has the Bright Stars Football Club, a team for persons with albinism. The team plays matches to promote inclusion through sports and educate the public on albinism.

    Apart from football, PWAs in Kenya are also making strong statements in the area of athletics.

    The prominent Kenyan albino sprinter breaking barriers is Jairus Ong’eta.

    Read Also: Adeshina, three other Nigerians for historic PFL Finals in Cotonou

    Ong’eta made history as the first person with albinism to represent Kenya at the World Para Athletics level, winning gold and inspiring others despite stigma and vision challenges. Another inspiring figure is Samson Ojuka, a long jump para-athlete also with albinism, aiming for the Paralympics and advocating for better support for Kenyan para-athletes.

    Both athletes are crucial in challenging stereotypes and advocating for inclusion, proving that individuals with albinism can excel in sports.

    Mali: PWAs in sports from Mali are known through the inspiring story of Adiaratou Iglesias, a Paralympic champion who fled persecution in Mali for Spain due to albinism-related attacks, becoming a world-class sprinter who uses sport to challenge stigma, while Mali itself has athletes with albinism in sports like athletics, despite facing significant discrimination and threats in their home country, highlighting both talent and the urgent need for protection

    Zambia: PWAs in Zambian sports are making strides despite significant stigma, with individuals like Paralympian runner Monica Munga using sports to challenge myths, while organizations like the Albinism Foundation of Zambia (AFZ) advocate for inclusion, organizing events in sports like swimming and indoor games to raise awareness, though challenges like sun sensitivity, fear from attacks (witchcraft myths), and lack of resources persist, with focus shifting towards sports like swimming, gymnastics, and chess, and increased community sensitization.

    Efforts to speak with NSC unsuccessful

    Efforts to speak with the DG of National Sports Commission, Bukola Olopade  to speak on what the commission has done or is doing to create enabling environment for people with albinism to participate in both indoor and outdoor games like their counterparts in other African countries were  unsuccessful as the mobile line was reachable.

    Online search shows that while the National Sports Commission (NSC) of Nigeria aims to provide equal opportunities to all sports and athletes, specific, dedicated programs explicitly for people with albinism  are not directly mentioned in recent information.

    “Existing reports suggest that individuals with albinism have historically been left on the sidelines in Nigerian sports, and no person with albinism has ever represented the country in any sports tournament. The primary focus of the NSC, as per recent updates, includes general talent identification, grassroots development, and supporting various sports federations, including those for para-athletes,” the search result revealed. 

    Long before, a  Commissioner for Youth and Sport, in Ogun State, Afolabi Afuape advocated for the engagement of  people with albinism  participation in sporting activities in the country.

    He said being persons with albinism  does not stop them from participating in any sporting activities of their choice, calling on the Federal Government and major stakeholders in the sporting industry to encourage their  involvement in sporting activities.

    ” There are so many in-door sporting activities that special people like albino can engage in. I will like to assure you that the Ministry of sport will immediately enroll as many of you that have interest in sporting activities as the Governor has more interest in the success of the people with special needs in the society” Commissioner said.

    Laudable as the remark was, it has not been implemented. Persons with albinism in the state and the country at large are still sidelined from sporting activities. Instead of encouraging them to participate in sports, the society thrives on using them for ridiculous content creation that further distresses many of them.

  • Too hot to learn for Nigerian children with albinism

    Too hot to learn for Nigerian children with albinism

    • Passion for outdoor sports sparks controversy

    As the sun burns furiously through the torn ozone layer every day, its extreme heat, aggravated by policy neglect, roasts the ambition of many children with albinism, GBENGA OGUNDARE reports

    Nifemi Olulana, 16, and AbdullahiAriyibi, 10, both share one passion – soccer. Although an ardent fan of English Premier League club, Arsenal FC, Nifemi would like to be like his football idol C. Ronaldo when he grows up. Abdullahi too can’t wait to dazzle the world with the soccer wizardry that C. Ronaldo epitomises in football fame.

    Yet, beyond their common fancy, both children have a mutual foe threatening their future soccer ambition – the scorching sun and its extreme heat brought about by climate change crises in Nigeria.

    Nifemi and Abdullahi were born with albinism. And with average daytime temperatures in parts of Nigeria now soaring above 40°C during the dry season, climate change is forcing majority of the children to make a cruel choice: their health or their academic and sporting dreams. Their skin, lacking melanin, is highly vulnerable to UV radiation and its ravages.

    Although both boys look forward to playing football with their mates every day, that is often not possible because of the damage exposure to direct sunlight could do to their skins.

    “He can only play football with his younger brother indoors,” Elizabeth Olulana, Nifemi’s mum, said.

    Fearing sun ravages, his parents clear the sitting room just so he can play a little. It’s the family’s protective strategy for Nifemi and his three siblings who are also with albinism.

    Not only that, the children are not allowed to participate in outdoor sports or activities, Elizabeth said. Even during school breaks, they must stay inside — isolated and restricted from engaging fully in extra-curricular activities alongside their peers.

    That traumatises Nifemi all too often.

    “In fact, I got so angry once when I was hoping to play in a Cowbell football tournament in Lagos but was stopped by my parent,” the boy recalled.

    Read Also: FULL LIST: 29 countries to phase out passport stamps

    “The anger grew worse when I found that I could play better than the person playing in my wing while watching the tournament.”

    Abdullahi, a student of FadluRaheem School in Ikotun, is not spared the restriction either. “I can’t play football at school because my dad has told me not to do so because of the sun,” he told the reporter.

    The blow back of not accepting the forced restrictions is severe for any child with albinism. Amaka Odimegwu, another mother, recalled the harrowing experience of her daughter with albinism who chose sport over her skin health.

    She said: “My daughter participated in inter-house sports practice. Afterwards, she came home with severe sunburn on her face. It was so bad I had to confront the school.” 

    Several other children like Nifemi and Abdullahi are barred — either by schools or their own families — from participating in extracurricular activities such as sports, field trips, or cultural dance practices that take place under the midday sun.

    The restriction, often justified as a precaution, presents the children with deep psychological scars.

    “When children are restricted from activities that their peers participate in, they may start to feel different or inferior,’ Dr. Charles Umeh, consultant clinical psychologist and senior lecturer in the Department of Psychiatry, College of Medicine, University of Lagos, explained.

    Abdullahi is already a victim. “I feel if I were like my other mates, I would be allowed to play football in the sun like they are doing,” he said, his voice laden with pain.

    Ditto for Nifemi. He can’t stop being sad each time he misses an opportunity to participate in team sports like his mates.

    He finds succour in the assurance of his parents though. “My dad always supports me whenever I feel sad because I can’t play ball with my friends. He would always say, ‘Nigerian weather does not support you playing football. But one day when we travel to London, I’ll enrol you in Arsenal’s academy.’”

    Yet, clinical psychologist Umeh warns of more mental impacts: “They may internalise the message that they are fragile, incapable and not good enough, which can erode their confidence.

    “This then leads to low self-esteem and low sense of self-worth.”

    The effects on the children can even be grimmer, warned Umeh. As the isolation from group activities trigger feelings of being ‘othered’ and scars their self-esteem, the potential for depression, withdrawal, or even self-harm thus become real for children with albinism in Nigeria, he explained.

    That is neither here nor there for Tolani Ojuri, the Lagos Albinism Association of Nigeria (AAN) chairman. The restriction of children with albinism must remain regardless. “And if we find any school or anyone allowing them to participate in team sports under the midday sun, we will go after them,” he said.

    According to Ojuri, the passion of albino children for outdoor sports is creating a festering health problem for the association already. “We now have individuals in their adult years who now need urgent cancer surgery because they chose to follow their passion for sport in the sun while they were children.”

    The hidden toll

    For her daughter’s damaged skin, Amaka got a profuse apology from the school as compensation. But the systemic neglect and lack of safeguards to protect children with albinism in Nigeria’s public and private schools received no attention.

    This neglect by policymakers and education authorities violates the Child Rights Act 2003 which has been domesticated by most states. Specifically, Section 1 of the Act emphasises that the best interests of the child should be of paramount consideration in all actions concerning children.

    The Lagos State Special People’s Law (2011), Section 26(11) on the rights of children with disabilities states:

    “In all matters concerning children living with disability, the best interests of the child shall be the primary consideration.”

    Had the authorities kept this provision, they would have created reasonable accommodation to address the special needs of pupils with albinism in both curricular and extra-curricular school activities. But all the schools the reporter visited in Lagos lack indoor recreational facilities where children with albinism can participate without breaching their skin health.

    A  World Bank Group news report shows this reasonable accommodation only requires little adjustments though. The Félix EstébanOller High School on the Nargana Island in Panama is a case study. The school authorities, with the help of the SOS Albino, only roofed the gym to enable its Albino children play alongside others.

    The Lagos Office for Disability Affairs (LASODA) did not respond to questions on this reasonable accommodation for school children with albinism. LASODA, though, caters to inclusion of PWDs in the state-level sporting affairs.

    Ojuri equally insisted it is not possible for LASODA.

    His argument is not for want of indoors sports—like table tennis, basketball, and others that can engage the children. Nor is it for any impact on the best interest of such children—the feeling of ‘otherness’ that buffets Nifemi, and the provision of the Child Act and the disability laws.

    “I doubt if any school, including the federal government colleges, anywhere in Nigeria has that kind of facilities for pupils with albinism,” Ojuri said.

    However, he was quick to reveal the regular provision of sunscreen, wide-brimmed hats and UV-protective umbrellas LASODA freely distributes to AAN members.

    ‘Get the hell inside!’

    Away from the playground, the heat stress remains an everyday reality notwithstanding, both for the Olulana children and other pupils with albinism.

    The past few months before the arrival of the rains in June had been hellish for the four siblings. They had to stay away from school sometimes because of rising temperature. Burns and rashes afflict their skins, Elizabeth, their mother, laments.

    Sunscreens, essential for their protection, come at a steep price: ₦15,000 per tube. With four children needing about eight tubes monthly (costing ₦120,000), the financial strain is devastating for the family. And when money runs out, the children are forced to rely solely on additional clothing for protection.

    Even with these precautions, they endure discomfort from the heavy protective gear which often makes it difficult to focus during lessons.

    “They lose concentration because of the discomfort,” Elizabeth explained. “

    “Since January, they’ve missed at least six days of school due to unbearable heat. It affects their grades.”

    And when attendance becomes unavoidable, …“we go very early to school before the sun is high, and have to wait hours after closing before it’s safe to go home,” Elizabeth said.

    Although Dr. Folakemi Cole-Adeife, Consultant Dermatologist at the Lagos State University Teaching Hospital (LASUTH), is of the view that government should prioritise the provision of free sunscreen for children with albinism,  “there’s no national policy mandating free or subsidised sunscreen for school children with albinism,” Bisi Bamishe, President, AAN, said.

    Holes in the policy

    It is an everyday dilemma for all of the albino children interviewed. They lament their experience of persistent itching, heat rashes and difficulty concentrating during lessons — symptoms worsened by their inability to tolerate prolonged sun exposure or harsh lighting.

    Classrooms lack basic ventilation, and cooling systems like fans or air conditioners are either absent or non-functional, the reporter found in his visits to many public and private schools in Lagos State.

    They have an alternative though: to leave the classrooms windows open to allow for fresh air.

    Ironically, that is not viable for children with albinism. “Their eyes are extremely sensitive to bright light, especially sunlight,” explained Ojuri.

    “Throwing open the windows may cool the room, but it causes visual discomfort and worsens their sight problems.”

    Such discomfort could be averted actually, especially with UV-protective blinds covering classroom windows. But for over a decade now, the National Policy on Albinism has remained a lame duck, with little political will to activate its recommendations — including school-friendly infrastructure, early skin screenings, and inclusive health insurance coverage.

    For instance, the federal government and many states are yet to see the sense in directing public schools to allow children with albinism modify their uniforms; a policy urgently needed, according to Dr. Cole-Adeife.

    “Albino children need to have their uniforms modified to protect their skin from the sun so as to prevent skin cancer.

    “Shorts should be trousers. Shirts should be long sleeves, not short. And they must have hats as part of their uniform to protect their face and neck from the sun.”

    Global warming, local bumbling

    While climate action remains a global priority, Nigeria’s national climate adaptation strategy has not integrated the specific vulnerabilities of children with albinism.

    In many parts of the country, for instance, school-based heat adaptation strategies exist only on the pages of policy documents.

    No one is thinking about funding for infrastructural improvement such as working ceiling fans or affordable cooling systems.

    At the moment, Nigeria has one of the highest incidences of skin cancer among people with albinism in sub-Saharan Africa, with children starting to show pre-cancerous lesions as early as age 10.

    In addition, most people with albinism in Nigeria die from skin cancer before age 40, according to a UN study.

    So while policymakers dawdle, extreme heat and prolonged UV exposure continue to take its toll on the overlooked children.

  • Albinism group trains teachers on inclusive education

    Albinism group trains teachers on inclusive education

    Albinism Association of Nigeria, AAN, in collaboration with the Federal Ministry of Education, has trained 60 teachers drawn from the six geopolitical zones on inclusive education for students with albinism.

    The three-day virtual training, funded by the Disability Rights Fund, DRF, was aimed at equipping educators with the tools and strategies needed to address the unique learning challenges faced by students with albinism in the areas of vision and health.

    Programme Officer for Disability Rights Fund, West Africa, Theophilus Oduada, underscored the significance of the initiative.

    “Students with albinism have long faced discrimination, stigmatization, and neglect. This training is about transformation not only in how we view students with albinism, but in how we build educational systems that are inclusive and supportive,” he said.

    He announced the official launch of a newly developed manual to guide teachers in effectively supporting children with albinism in classrooms.

    Executive Director of the Albinism Association of Nigeria, Dr Bisi Bamishe, thanked  stakeholders and reaffirmed the organization’s commitment to inclusive education.

    Read Also: The education question: Primary schools – 1

    “This initiative, as you may know, is designed to equip educators with the knowledge and skills to foster a truly inclusive learning environment for students with albinism. We have come together with a common goal: to build a robust educational framework that will effectively address the unique needs of these students.

    “As you may be aware, students with albinism have long faced discrimination, stigmatization, bullying, and a lack of attention to their specific needs, particularly in the areas of vision and health. These issues, unfortunately, continue to hinder their academic progress and achievement.

    “This training is aimed at addressing those barriers and providing teachers, administrators, and stakeholders with the tools and strategies they need to help these students overcome these challenges and thrive academically, just like their peers.

    “This initiative is a dream come true. We are setting a foundation for schools that recognize and accommodate the unique needs of our children,” she said.

    Bamishe also thanked the DRF, AAN team, consultants, and the Federal Ministry of Education for their collaboration, noting that the training represents a pivotal moment in the association’s  drive for advocacy.

  • Albinism association seeks help as cancer claims 16 members

    Albinism association seeks help as cancer claims 16 members

    The National President of the Albinism Association of Nigeria, Bisi Bamishe, revealed on Monday in Lagos that sixteen of their members died of cancer in 2024. 

    In her New Year message, she called on both the government and the public to assist approximately 40 members currently battling skin cancer.

    Ms. Bamishe emphasized the urgent need for financial support to enable the affected members to undergo critical treatments, including surgery, chemotherapy, and radiotherapy, which could potentially save their lives.

    “Skin cancer remains a critical health challenge for persons with albinism in Nigeria, and without immediate intervention, the situation may spiral out of control,” she said.

    Read Also: Endangered species: Nigerians with albinism at receiving end of climate change

    She added that many members of the association are enduring immense pain in hospitals, while others suffer in silence and isolation at home.

    Ms. Bamishe called on the government, individuals, and development partners to provide life-saving support, including donations of sunscreen, UV umbrellas, hats, protective clothing, and free or subsidized treatment for skin cancer patients.

    “Your continued support can make a significant difference in addressing these challenges posed by this silent killer,” she said, urging for sponsorship of awareness campaigns in schools, markets, worship places, and media platforms.

    The association’s president appealed for sustained and increased assistance to ensure that no member succumbs to what she described as a preventable and treatable condition.

    “As we embark on this New Year, we look forward to your renewed commitment to improving the lives of persons with albinism in Nigeria. Together, we can turn the tide and create a future where every individual, regardless of their color or condition, can thrive and contribute meaningfully to society,” she said.

  • The blood, albinism, leaking urinary bladder (3)

    JUNE was a month of one World Day after another. The blood, albinism, sickle cell disease had one day each. Last Monday was Mosquito Day. The urinary bladder may find a place on this growing list. Only people who have been challenged by “Urinary incontinence” will recognise that, while this may not be an incurable disease or seriously life-threatening it is, nevertheless, an embarrassing which may make the sufferer feel disabled. The picture I often see when thoughts of these conditions cross my mind is that of a pretty, effervescent woman reduced to a caricature by a stroke which took away from her control over her urinary bladder. It was bad enough that her husband was gone, and all her children, grown, had left home to found their own families. To worsen matters for her, she had to live with her son whose wife soon got tired of changing diapers for an old woman. The emotional stress which followed the stress of her son’s marriage must have made her lose the will to live. Some women are luckier. Their leaks are not caused by a stroke and are often easily treatable because they are not disease, but symptoms of them or other less problematic events. The bladders of a man and a woman leak little amounts of urine when they laugh, cough or lift heavy objects. Some of them may be old, and and the nerves and muscles of their bladders may have become weak in the ageing process. Some may have germ infected urinary bladders which make these storages contract irrationally to expel urine. When a woman has had her womb surgically removed, urinary incontinence is not too far from the picture. For the womb and the urinary bladder are supported by muscles and ligament common to both, and the surgeon’s knife may have been intruded hither and thither. Child birth does not always leave a woman unscathed. Apart from the pressure of the uterus and foetus on the urinary bladder during some pregnancies causing small and frequent emissions now and then, the uterus may prolapse, that is leave its bounds. The intestine, too, may protrude into the vaginal region, disturbing equilibrium in the pelvic. In some men, the phosphate gland may be inflamed, enlarged or it may have become cancerous. Some pharmaceutical medicines may be the culprits behind urinary incontinence. So can a large dosage of vitamin C or diuretics. At work, also, may be coffee, caffeine and spicy foods or drinks.

     

    Types of incontinence

     

    Doctors divide urinary bladder incontinence into different groups in accordance with their presentations. The common groups are related to stress, infection, overflow, function, timing (temporary or permanent), medicating (heart and blood pressure medicines, muscle relaxants e.t.c.)

     

    Stress

     

    Coughing, laughing and exercises, such as lifting of heavy objects, may pile pressure on the urinary bladder and cause urine leakage. The spincter muscles at the neck of the bladder ought to withstand the pressure. As it doesn’t, there is a suggestion that, either in constitution or tone, this muscle is weak. This may be a subtle message that the health of muscles throughout the body needs to be addressed. This is important. The heart is a crucial bundle of muscles. Muscles hold the skeletal system together. The uterus, too, is a muscular organ. Muscles hold the eyeball to its socket. Even in the eyeball, muscles are present. In such disease conditions as glaucoma, muscle weakness is indicated. But all too often, attention is not paid to the entire body or to the fact that muscular dystrophy may be emerging, worsened as well by nerve deterioration. You probably have heard reports of people who collapse on their own weight. Their muscles and nerves just cannot hold their bodies together. I was told of a case in Ibadan last year. She was in her 60s. If she tried as little to cross a road in haste, she crashed. So, she had to seek help all the time. I suspected this could be a case of “mild beriberi” in which the nerves and muscles are deprived of thiamine, Vitamin B1, through dietary deficiency. People whose diet is almost exclusively refined rice suffer most from it. People who live on divretics, such as hypertensives, may always have their thiamine stocks washed away in the urine. Nerves may begin to deteriorate when they do not have enough thiamine and this may affect muscles. Realising that Lions Mane Mushroom  is one of the rare herbs which supports the regeneration of mangled or damaged nerves and, in addition, increase nerve flow or energy flow in the nervous system, among new discoveries about its other contributions to health in other parts of the body, I suggested Vitamin B1 and this mushroom to this woman. As set to write this column, I called the woman who introduced her to me to ask about the health of the older woman. To my joy, the younger woman reported that she was now as fit as fiddle. Such was the status of a young man who was falling on staircases and was, also, beset with slurry tongue. To understand what a slurry tongue may imply, push forward your tongue and try to speak!

    To Vitamin B1 and Lions Mane Mushroom may be added Magnesium. There are many brands of magnesium in the market, but many of them are not easily bio-available and are, therefore, good waste of money. The brands most often considered good are Magnesium Orotate and Magnesium Citrate, in that order. In a state of magnesium deficiency, the body is like “frozen” because the status suggest calcium dominance. Calcium contracts, but magnesium relaxes. It is this situation of contraction and relaxation which keeps the body in equilibrium. What has been suggested above does not rule out the use of bio-chemic tissue of cell salts which improves nerve and muscle constitution and tone.

     

    Urge incontinence

     

    When nature calls and you head for the rest-room but urine begins to drip before you arrive there, or it cannot wait for you to undo the zip or buttons, that’s urge incontinence. An infection may be at work, which may be easily cleared up with such natural anti-microbials are corn silk, cranberry, Aloe vera, Garlic, Golden seal root, Mango seed Extract, Collodal Silver, Black walnut Hull, Apple cider Vinegar, Maria Trebens Swedish Bitters, and proprietary blends such as Virus Viral, Bladder and yeast infections, Amazon A-F, Amazon A-V, Grand Aloberrynectar and the likes of them. But, sometimes, urge incontinence may have neurological foundations, or even diabetes. In the case of diabetes, prompt action should be taken to avoid such degeneration as may affect the eye, kidneys and nerves. Chromium or chromium-containing formulas such as BLOOD SUGAR, BLOOD SUGAR BALANCE may be called up. Herbs, such as FENUGREEK and CINAMON, are good. My current pets are ORANGE PEEL POWDER, which have been out of the market for some time, and RED KIDNEY BEAN POD POWDER. The latter not only cuts blood sugar well, but it also, helps many kidney conditions and supports weight management.

     

    Overflow incontinence

     

    Here, urine is not flowing reasonably out of the urinary bladder. That means the bladder does not empty completely despite intense urge, causing frequent or constant urine dribbling, such as experienced by when beset with inflamed, enlarged or cancerous prostate gland. Many men are now aware this symptom is better not treated with kid gloves, having witness the discomfeitures of many friends who either have to go about their activities of with a cathether and a urine bag on their bodies, or who have had to undergo expensive n50-50 chance of survival surgeries, with many dying in the process. Now, such men know they have to be on a daily zinc supplement, in addition to other vital food supplements. About 80 percent of the zinc in a mans body is behaved to be resident in his prostate gland where, combined with prostatic fluid, it makes the sperm fertile and provides it an excellent alkaline environment for its survival in the acidic vagina environment. Many cases of a couples infertility may be caused by an overly acidic vagina and a semen not alkaline enough to survive this atmosphere. Men themselves may be responsible for this by being sexually over-exposed without responsibly restoring, dietarily, the zinc they lose with every ejaculation. This brings them nearer their prostatic waterloo because of another vital function that zinc performs inside the prostate gland. Inside the gland is an enzyme named 5-ALPHA REDUCTASE. In the presence of adequate amounts of zinc in this gland, 5-alpha reductase behaves normally. It cuts the picture of a rat in the colony of cats. When zinc is indefficient status in the prostate gland, 5-alpha reductase goes to town as it were, converting the male hormone Testosterone to Di-hydro testosterone (DHT), which encourages or stimulates prostate gland cells to overgrow or enlarge. As any man of my age should care for his prostate gland in an environment where men about 20 years younger are stumbling, I do not wait for warning signals before I take the bull by the horn. I even encourage my son who is under 30 to get on zinc culture. Every morning I make him make a tea pot of Stinging Nettle Root Powder Tea for both of us. This is reported by Maria Treben, the Austrian author of  HEALTH THROUGH GOD’S PHARMACY, to be one of the best blood builders and cleansers on the face of the earth. I go for it more for its ability to make urine flow naturally through a check on prostate gland enlargement. Some people prefer the leaf, but I think I do much better on the root powder as tea or sprinkled on food or wisped into juice. For me, it increases the force of urine voiding, frees the pelvic of that pressure often associated with urine retention after voiding. Besides, it increases the quantum of urine voided, thereby eliminating the question of and need for frequent voiding. Of all the other remedies I would have liked to mention, I would be able to talk about only ROBUST ROOT and AFRICAN BLACK ANT. Robust Root is indicated primarily for low male libido and, erectile dysfunction, turgidity and all that. It works for these immediately and long term. One of the side effects often reported by the users is that, suddenly, they begin, again, to experience early morning turgidity which is a hallmark of a virile man. Even children experience it. Something must be going wrong urogenically for the mature man who no longer experiences it. As an icing on the cake, perhaps, experiencing it helps to overcome some, if not all, of the challenges of overflow incontinence. As for African Black Ant, which works gradually, it is reported to help out in prostate gland enlargement in addition to its libido and erectile dysfunction healing activities.

     

    Functional incontinence

    This occurs when a mental or physical ailment delays arrival in the rest-room, or, while there, one cannot immediately get into the act.

     

    Mixed incontinence

     

    Sometimes, combinations of these problems or all are the root of the challenge. For women only using the United States model where about 25 million people experience urinary incontinence and about 80 percent of them are female, it can be assumed that more women than men suffer from this condition in many countries. After all, they are the ones who suffer more from yeast and candida infections in the urinary tract where the equally dangerous or more virulent ailments abound. For this reason, many women turn up at the doctor’s. But, increasingly, they are becoming frustrated by anti-cholinergic drugs they are given to normalise events in their bladders. Some of these drugs leave the users with unpalatable side effects such as blurry vision, faster heart beat, dry mouth, an indication of constipation, memory loss and even convulsion. In the search for safer options, some have had bladder or vaginal surgeries to shore up muscles and ligaments which hold the urinary bladder in place. Women do not give up in the search for health. Pressing their doctors for better and safer and more convenient options, women who are Challenged have obtain a number of natural reliefs or cures from the natural medicine industry, about five of which I will sickly mention here.

    The first is the party liner which, as reported in this column a few months ago, is now becoming popular in Nigeria. It is much lighter and smaller than the typical menstrual pad menstruating women are familiar with. It is not used by only women who suffer from vaginal infection and do not want discharges to soil or ruin their panties, or who wish to avoid embarrassment of the repulsive odour which these discharges may spew around them.

    Panty (or panties) liners are now worn by women who suffer from any form of urinary incontinence. Such women keep a few panty liners in their bags and wear one over their panties. When urine drops (or those vaginal discharges) soil the one they wear, they simply walk irrelevant to the rest – room, change it, throw it into the trash and walk away, free again. The second option is a behavioral change.  It is timed voiding. That means, tying to empty the bladder at regular intervals. My friend are surprised to learn that I void the bladder every four hours, full or not, except at night, when I may be pressed once. This, along with thiamine, lions mane mushroom and magnesium helped me to curb urinary incontinence. Timed voiding also helps to prevent microbial build- up and overgrowth which may cause urinary tract infection.

     

    Kegel’s exercise

     

    Developed by Dr. Kegel is a third option. Please search the internet for this. It is being employed to day by millions of men and women world-wide to solve pelvic flour challenges such as urinary and incontinence, premature ejaculation of flabby vaginal wall muscles arising from birthing or other challenges. Magnesium constitutes the fourth option. This is a mineral that is becoming more well used as a food supplement these days because of its importance in normalising nerve and muscle function in blood pressure mechanisms, sleep disorder, joint immobility, constipation, mental adroitness and other situation. In the troublesome bladder, there may be more calcium than magnesium in the calcium / magnesium mix. This may lead to contraction of nerves and muscle spasms which cause irregular dropping. Just this scenario may be playing out in premature ejaculation which leaves many sexual partners exasperated and fusions. Magnesium in the bladder tissue helps to calm tremulous nerve and muscles and, thereby, helps to resolve urinary incontinence. One study at Tel Aviv University involving 40 women is deported to have confirmed this hypothesis.

    Finally, women wound need to get out more in the early morning sun, which is same to help the body absorb Vitamin D, which in turn, is known to help the absorption of calcium into the bones. Too much calcium outside the bones may cause deposition of this minerals on soft tissues, hardening them, as in Arteriosclerosis (hardening of the arteries) which may cause high blood pressure. According to a 2010 study published in OBSTETRITS and GYNEOCOLOGY reported that women who presented higher levels of Vitamin D exhibited lower risks of pelvic flour disorder, compared with women with a lower levels of this sunshine Vitamin. These pelvic flour disorders included urinary incontinence. There would no doubt, be more safer option available to women and men beset with incontinence. We may talk about thesew another day.

  • The blood, albinism, leaking urinary bladder (2)

    JUNE 2018 was a memorial month for many people. In Nigeria, June 12 was anointed the new DEMOCRACY DAY. June 13 was celebrated worldwide as BLOOD DAY (see the first part of these series). June 14, worldwide, was the ALBINISM DAY, during which the albino,that man or woman in any race who has no pigment in his or her skin, eyes and hair is presented to the rest of humanity as a normal human being, irrespective of genetic differences. And June 17?it was FATHERS DAY! I did not hear much said of fathers, though, except that, as we say in Yoruba Land, omo okunrin ti o ba gun esin obinrin maa kan li ese (the male child who rides on a woman horse would have a broken leg). By this saying, the Yoruba’s tend to consign the upbringing of girls to their mothers, and boys to their fathers. The reminder of this is that a boy brought up by a woman cannot be a man (i.e. the broken leg, on which, of course, he cannot walk smartly through hazards of earth-life). In other words, it is implied, however successful such man may be, he would remain emotionally imbalanced! It was believed then, and probably even now still, that such men would think and feel like women, almost denatured. And that informed why women were allowed to nurture their sons for only seven years, after which the boys were weaned off them to join their fathers on the farms or in whatever occupation they engage in. Today, I would like to give the floor to the albino.

     

    The Albino

     

    Unless the albino is an inwardly stable person; his or her life is most likely to be a tortuous, even devastating one. It takes more than guts for a woman to marry an albino for man as it is for a man to settle for one. Even among albinos, albino-albino marriages are rare. One albino who was interviewed in a Lagos radio programme on albinism day said he outclassed other candidates in a pre-employment test, but he was not given the job because it was thought the sight of him may jeopardise the corporate interest. In my early days in journalism that is in the 1970s, two of the contributors of the newspaper on which I worked, the Daily Times, were albinos. They were prolific writers. One of them died of skin cancer. I lost contact with the other in the 1980s. But, by the mid-seventies, I met another one in the university. He was an intelligent Catholic Reverend Father. He had a cleaner skin than the ones I met before then. This was probably because he had money to take care of his special skin challenges. In the course of my public advocacy to popularise alternative medicine and nutritional approach to health and wellness, I have met more albinos, and I have known joy when they incorporate suggestions I offer into their lifestyles, and these work wonders for them.

     

    Albino Myths

     

    The albino is enveloped by many myths in south-western Nigeria. One is that albino health is damaged by the consumption of table salt, and so, albinos avoid it. The impression this myths convey is the picture of an earthworm sprinkled with table salt. But this isn’t true; albinos are not that vegetable. Many of them consume table salt than many non-albinos. We cannot discountenance abstention, though, in conditions of hypertension and other disease-situations which demand that non-albino as well limit their dietary sodium intake. Another scientifically disproven myth is that albino babies are made when a man cohabits with a woman during her menstruation. There are transcendental imputations which are beyond the province of science. One of these is that albinism is punishment for theft from the court or temple of a deity in a previous earth-life. I have heard such suggested, as well, in the cases of “incurable disease” of karmaic origins. One of such concerns the priests of the sun god in the days of sun worship in Egypt. The priests were said to force stubborn unbelievers to look into the sun with their eyes wide open till they became blind. What do we expect, it is asked, if justice reigns in the universe and such perpetrators of such misdeeds are sent back to the earth after their passage, to reap the harvest of seed they once sowed. Another quick reminder of such karmaic friend, we are advised, is the execution modes in the courts of  Yoruba obas (Kings) of the days of yore, when the oba was a supreme ruler; next only to the deity. The Oba pronounced death sentence with the instruction that a spear be plunged into the eye of the condemned person until the spear emerge at the back of the head! If we have no faith in these assertions known, at least for now, to be beyond the capacity of science to verify, why are we not reminded easily, we are asked, by what befalls the Ogbanje or the Abiku, who traumatised their parent? The Ogbanje and Abiku may or may not be mere mythological conceptions. They may or may not be mere sickled cell diseased persons who died at their appointed tenures but are misconstrued to bekill-joy members of a principality or power centre in the cosmos who enjoy themselves by tormenting parents who have made children breeding their earth – project. The Igbos call them Ogbanjes,  the Yorubas, Abiku. And Abiku may recycle himself in a family about three or fourtimes before anyone suspects what is going on. He or she incarnates in a family. But first when the parents begin to know joy of parenthood through him or her, he or she defects, through death, to the principality, where resounding joy rings out over a mission accomplished. In yorubaland, the elders teach such souls a lesson by mutilating the bodies of Abikus or burning it. People given to astral life know it is possible for a departing soul still attached to the body to feel the paininflicted on that body. Such mutilation hardens the criminal soul for more devastating exploits next time. But when he or she re-incarnates, what do we find? The marks of these mutilations or burning appear on the corresponding parts of the body of the new baby.At this time, all efforts are made to disconnect that soul from the power centre or its earthly legion.

    This automatically leads us to the possibility of how an albino came by his or her body, like the rest of us. We know about the sperm from the man fertilising the egg in the woman, and often marvel at howthese resultant zygote grows into a humane body. We will never stop bowing before the majesty of the wisdom of the Almighty Creator. Everything which exists has an astral prototype.

    KillianSemyom has demonstrated that scientifically with his Kirhan photography. We have seen it demonstrated, also, in Psychic or astral surgery. When we scream in dreams and simultaneously scream in the physical, there are two dimensions to that event. So, when a man and a woman engage in the pro-creative act and, thereby, set off vibrations which form into a channel to souls wishing to incarnate, many event at the astral level begin to take shape. A baby may be set off to grow in the womb. A human soul to inhabit that growing body someday may be appointed to it to the exclusion of others under rightful conditions. At a certain time in the course of these event, the coming human soul connects with the would-be-mother and the baby forming in her womb with threads of radiations. These radiations present an astral prototype of that coming soul to the growing body. In that astral prototype are all the features that human souls would bear on earth this time around. They are the resultants of its previous earth-life and experiences outside the realm of the earth. It is after the astral prototype that the growing body develops. Even there are genetic semblances with the parent or great, great grand parents, it would be because they are all homogeneous souls or linked by Karma. Who knows if they were all one Sun god priests?

     

    Signs of Albinism

     

    The Albino is known by many signs, especially lack of pigmentation in the skin, eyes and hair. The pigmentation is given by melanin. This means albinos have no melanin or do not have enough of it. In the physical sense, Albinismis thus a congenital disorder.There are many types of albinism in humans, but these are not our concern. For the purpose of this column, it is sufficient to know that, in the skin, pigmentation may be totally or slightly absent or absent in patches. The loss of pigmentation expose the skin to oxidation by cosmic rays, as there is no filter for them, and this may cause cancer. The skin may be crumpled, burned or “cooked ” in the eyes, albinism may cause redness, poor vision day and night. Eye colour may also be violet, but it is generally blue. Vision is low or poor because of abnormal formation of the retina, and the connections of the eye and the brain which eye glasses cannot correct. Many of them have a vision acuity of 20/200 or less. The hair may present colours ranging from cream and yellow to reddish tinge, blonde, yellow or orange or even light brown. There are more signals coming from the albino eye. They may be crossed eyes, rapid eye movement, lazy eyes, photophobias, sensitivity to bright eyes and glares, short sightedness or astymatism. Poor development of the retina, the light sensitive part of the eye, misrouting of the optic nerve to the brain.

    In Nigeria, some of us make a mistake when we assume albinos exist among only Africans. No race, Asian, European or American is spared this congenital disorder. While among some it occurs in between one to 18,000 and one to 20,000 of the population, it may present in one to 3,000 of others. In some albinos, the skin is not completely “bleached”. Some African albinos have reddish skin. The impact on vision also varies from mild to worse.

     

    Help For Albinos

     

    In Nigeria, some albinos are too poor to help themselves cope well with their conditions. Some are ignorant, that is they do not have information on what to do. But, now, they are forming associations and linking in social media. The public relations officer of one of these associations told Radio Lagos that he always sought to help to cross the roads, wore protective eye glasses, used binoculars to view distant objects and magnifying glass to read. I would like to begin with photophobia, that is sensitivity to light. This is in varying degrees. It may be caused by nutritional deficiencies such as Vitamin A, Vitamin B-complex, carotenoids, especially, lutein and zeazanthin, zinc and essential fatty acids. Photophobia may be aggravated by migraine. This type responds to Riboflavine (Vitamin B2), which is best taken along with a good dosage of Vitamin B-complex. The albino has to watch out for such as Tetracyclin, anti-diabetic and anti-malarial medications. They sometimes cause photophobia. So are eye drops which dialate the pupil, such as in glaucoma. People who naturally have large pupils have a predisposition to photophobia as their eyes let into much light. As dry eyes also cause photophobia, Vitamin A supplements may help. It is better to take solublelised (water soluble) Vitamin A as this is tolerated by the body, the liver in particular, in large amounts. When supplementing with lutein and zeazanthin, it is advisable to include broad spectrum carotenoids as well. Lutein and zeazanthin are, like Beta carotene, members of the 600 or so plus carotenoid family.

    The carotenoids may be found plenty in marigold flowers which are now available commercially in powder form. Lutein and zeazanthinare commercially extracted from them from all sorts of eye care medicines.

    Zinc is ideal because, without it, Vitamin A may not be well absorbed or used by the eye. Alpha Lupoic Acid is important. It is an antioxidant  active in fat and fluid media, both of which are present in the eye. This brings us to the need for other anti-oxidants helpful to the eye such as grape seed extract, Vitamin E and Bilbery, which protected British pilots against the glare of bombs during the Second World War. Zinc is an anti-oxidant to consider for the skin, either as an ingredient in body creams. We should remember that zinc is a chief ingredient in calamine lotion which clears the mess of measles in the skin. Albino skin needs it, too. I will seriously also recommend Orange Peel Powder in the body and hair cream of albinos. It clears scars in some people and protects the skin against the sun’s ray, apart from thickening the hair, making it grow long and sturdy andpreventing dandruff.

    Back to the eyes. In a study, Stringham and                Hammond report to the journal of food science that visual performance improved and light sensitivity decreased in subjects who took Carotenoids (10 mg lutein and 2 mg zeazanthin) everyday. Lutein is found more in leafy, green vegetables, including, as often mentioned in this column, Kalie, spinach, Spirulina and carrots. Magnesium relaxes blood vessels in the eyes to, like Bilbery and Ginkgo biloba among their other benefits, improve blood circulation.

    As for the skin of the albino, we may add to the recipes already mentioned for it dietary supplements such as Silica, which is good for the skin, nail and hair for everyone.

    Broad-rimmed hats, not just face caps, are recommended. Dark clothing is good, as black repels light, thus preventing the skin from absorbing Ultraviolet (IUV) light.Skin screen massage oils are helpful. Many people talk about Red Raspberry oil this may be scarce in Nigeria. Coconut oil has tingesof vitamin E and plenty of Lauric acid which kills parasitic micro – organisms as proven in oral use for diarrhea in HIV/ AIDS . I have seen skin condition helped by peanut oil fortified with vitamin A. Super – oxide dismutase (SOD) oil is no push over. The same goes for neem (dogonyaro) oil. Flat seed oil may be smelly but may be a good ally dietarily. So is Udo’soil. When Awocado is in season, it may be used as skin and facial scrub 30 minutes before a bath. The oil is a friend of the skin. Do not throw banana peel away it can produce a good skin and serve as a face scrub as well. There must be a place for cam wood. Ditto Shea butter. My cream is made of Shea butter, coconut oil and orange peel powder. Another recipe is sesame oil, lavender oil (20 drop) and one teaspoonful of vitamin E oil Albinos should hot indulge in foodless foods. Those to avoid like a plague are refined carbohydrates, white sugar in all forms, fried foods, hydrogenated fat, trans fatty acids, processed food, preservatives, while flour food of all kind. Fruit and vegetables, especially those with high anti-oxidant content, are their best friends.

  • The blood, albinism, leaking urinary bladder (1)

    HEALTH, like peace, has become the focus of international organisations. Once a year, at least a day  is set aside for mankind to think about a pressing health concern. June 13 was celebrated as the world’s Blood day. The following day, June 14, was ALBINISM Day. It was the day on which mankind was invited to think about albinos, to puncture myths about them which had no scientific basis, and to see them as normal human beings whose skin complexion is only different from that of other people. There is no normal human being who does not have respect for the human blood. For many, it is mysterious. I recall vividly my first blood donation at the Lagos University Teaching Hospital (LUTH) in 1983 when my wife registered at the anti-natal ward ahead of the birth of our first child a few months later. I was to donate one pint of blood. I couldn’t look at the bottle into which the blood was draining because it made me feel life was draining out of me. But I was glad to donate it for the love of my baby who was on the way. I must confess that, since then, I have made no other blood donation, irrespective of the advice that, for optimal male health, men should donate blood at least once a year, to prevent accumulation of iron in their bodies. Women need not worry about this because they lose blood through menstruation every month. As for albinos, I am filled with pity for them. They cannot see well during the day and at night. Besides the skin rumples easily through oxidation by the rays of the sun and when it comes to employment, some employers discriminate against them in the name of corporate image. When I met some of them and we get talking, I suggest dietary help which may help them to improve their vision and skin conditions. I am unaware if leaking urinary bladder has caught the world attention in a scale to focus attention on it at least once every year. For the men and women are troubled by it, it remains largely a personal problem. I have heard story of women who smell over urine and ruined dinner dates as a consequence. In the restaurant, they may feel pressed and head for the rest room. But before they arrive there and pull their underbriefs, urine pours forth in showers or torrents. Many women so troubled carry panty-liners in their bags or actually have one on. That one takes the bashing, and saves the brief and the dress and the woman from embarrassment. Beyond this, there are ways in which urinary bladder neck sphincter muscle can be strengthened, as though with a screw, to prevent leakages. I adopted some of this measures when I began to experience little leak. I don’t just put it down to the aging process. I knew I was being advised by the leaks that my nerves were either becoming weak throughout the body, as shown in the bladder nerves, or that some infections or stress were disposing me to urinary urgency, one of the features of urinary incontinence, another name for leaking urinary bladder.

    The blood

    June 13, World Blood Day, invited our attention, to not the mystery of the blood but to the need to donate blood from our own health, and to build the blood banks where clean blood can be kept for the use of blood-depleted accident victim and blood-requiring sick people. Ironically, a laboratory technology man was arrested in (Onabola Street, Shomolu, Lagos) a few days before the World Blood Day for running an illegal blood bank business which almost led to the death of a young man. He paid N2000 for every pint of blood donated. The young donor kept donating blood and collapsed after four pints had been drained off him. I wish to talk not about these things, but about what many people see as “the mystery of the blood”. Before the blood groups were established, many people died from transfusion with blood incompatible with theirs. The discovery of the blood groups stopped that. But that has not resolved the mystery of the blood.

    I do not know why Jehovah’sWitnesses do not take another person’s blood, even at the point of death. I am not a witness, but I too, would avoid it, if I can. My reason is that the spirit makes the blood for a special reason, and that, since no two human spirits or souls are identical in every material particular, the blood of one cannot, ultimately, be suitable for the other. I take my bearing from three beacons.

    • Blood does not begin to circulate in the body of the fetus in the womb until mid-way through pregnancy, when a waiting soul incarnates in that body, giving the alert mother-to-be the signal of this in the first kicks of the baby.
    • At so-called earthly death, when that quantum which set the blood circulating leaves the body, the blood stops to circulate and no longer even exists in its known form.
    • I accept that the human body originates from the animal kingdom, though, from the highest developed animal, at the time human scale first arrived on earth, incarnated in them and uplifted those bodies.

    If we exclude the factor of the soul or human spirit in blood formation, then human blood would not be distinctly different from animal blood. These parameters established, we may now seek to discover why the spirit would be involved in blood formation, and how “foreign” blood in one person’s body may obstruct that persons well being during earthly existence, unless he knows he is likely to be helped by a doctor knowing in these matters who helps him or her to recompose his or her blood to that consistency which agrees with his or her intrinsic spiritual nature.

    This will lead us to question such as what is spirit, what is soul?

    Briefly, spirit is a being from the spirit world. In that world, there are mature and immature spirits. They constitute the finest gradation of the spirit environment of the world; in which there are trees, mountains, rivers e.t.c made of spirit substance. It is like on earth where the human body is the finest gradation of earth material or dust, compared with dust trees and dust or Earth Rivers. As we sow ears of corn or mango seeds into the earth soil, to sprout, germinate, flower and fruit in fulfillment of the purpose of its creation, the immature spirits are likewise sown in worlds below the spirit world, someday to flower and to fruit. Between the spirit world and the earth, there are many world terrains. The immature spirit or spirit germ takes a covering in every world it passes through on its way to the earth. On the earth, it takes a covering in form of the human body in its mother’s womb. It would drop this covering as it returns home someday, casting each one away wherever it picked it form. The spirit together with all coverings but minus the earth covering, is the soul.

    The spirit is too fine to deal directly with the earth body, even though we see them working together. Thus, in dreams, when we shout, people in the room who hear our shout wake us up to ask us about what is going on. And when we wee in dreams, we may find our beds wet in the morning. Sometimes, we do not wet the bed, but we wake up to find our bladders so full that it needs to be emptied. The body has merely communicated with its owner and occupant to get up and relieve it of the mess. I was cooking in the kitchen one day, and went to the sitting-room for a nap. I found myself dreaming later that the food was burning. In that dream, I rushed to the kitchen, lifted the pot cover without caution, and burned my fingers. I woke up just about then, rushed to the kitchen exactly as I did in the dream, and burned my fingers.

    Recently, I announced on FACEBOOK how one of my classmates in high school (1964-1968) announced to me in my dream that he had passed on. When I made enquiries, I found it was indeed true! There is an astral body covering layer between the soul and the earth body. It is in this astral body that many people experience dreams. When they talk about spiritual attacks in dreams, it is most likely this body that was attacked, say in gunshots or the consumption of poisoned or charmed foods. And since the astral body impacts on the earth body, the manifestations come to pass sooner than later. The spirit glows through all these coverings. Even then, it cannot make full or meaningful contact with the earth body from the astral body except through the radiations of the blood, the finest that the earth body can produce. When we give the body the right materials to compose the blood, it is actually radiation of the spirit which do the composing and the driving of the blood around. Thus, when the right materials are not supplied through the diet, and the spirit is weak, the blood radiations will be weak. Age, illness and diet make important contributions to this scenario as well. In short, the blood radiation is the vehicle through which the soul, nay the spirit, expresses its volition on its tool, the physical body, and through which it receives impression from the outside world. The spirit of a pregnant woman attracts to her a soul most homogenous with her. The Yorubas of southwestern Nigeria understand this. They admonish pregnant women not to parade themselves carelessly in public and at even special hours. Only seldom does a “black sheep” get attracted into a family through this process. When such happens, it is still within the lawfulness of the law of Attraction of Homogeneous Species or of Karmaic Linkages. Someone with “black sheep” radiation, if we may call it that, may have been around the pregnant woman long enough to make this happen, or other karmaic threads may be at play. Whatever it is, the spirit impresses its volition on the blood radiation which brings it to the back brain, the spiritually-receptive part of the brain. Any pictorial impression we experience, or, better still, anything which occurs to us in picture form is the volition or message of the spirit to the body. After the back brain has formed the volition of the spirit into a picture or pictures, these pictures are again taken by the blood radiation to the frontal brain. This part of the brain interprets these pictorial images and instructs their expression in thought, the spoken word, or other actions. When we rise from a dream, it is the impressions of the spirit in picture forms we remember, and only afterwards does the frontal brain convert them into thought and other activities. Similarly, impressions we encounter in daily activities are taken by the blood radiation from the frontal brain to the back brain and, from there again by blood radiation, to the solar plexus and the spirit. Anything which impedes this communication process between spirit and body makes the spirit to not experience earth-life as robustly as it should, and may, indeed, constitute a waste of its time on earth, however long it may live here. These impediments may include disease of the brain, poor blood composition and poor blood quality arising from poor nutrition and other factors. If the blood radiations fall so low, this may encourage disembodied souls, that is souls not in physical bodies who are either earth-bound or loitering after physical exit from the earth, to plug into such weak radiations and, through it, to take possession of the brain partially or wholly, temporarily or permanently. We encounter such scenarios in “possession”, when a person is declared insane, and in autism, when communication between the spirit and the physical body is impared one way or the other. The same goes for dyslexia, imbecility e.t.c. we are granted the hope in our generation that these challenges arising from poor composition and poor blood are reversible. The hope lies in the conception that “there are no sick souls or spirits” and that the healing formula lies neither in “injections” nor “drugs” but “in the right kinds of foods and drinks.” Principal among these foods and drinks are whole grains, mineralising and vitaminising fruits and vegetables, blood cleansing and blood building foods and herbs, liver and kidney cleansing and protecting foods, Chlorophyll-dense food e.t.c. this column mentions them all the time. From Barley Grass, spirulina, wheat grass and lemon grass to spirulina Kale Corriander cilantro, chlorella, Graviola, pomegranate fruit and seed to Nimosa Pudica e.t.c as I said earlier, I do not know why Jehovah’s Witnesses refuse blood transfusion. It may very well be from the viewpoint that transfused blood and “resident” blood will form “amalgam” blood, which on account of their not being homogeneous, may be unable to provide the spirit with that reliable bridge on which to express its volition or desire on the body, thus minimizing the viability or success of its earth-life. With this knowledge, many lessons of earth-life stare us in the face. Among them are:

    • We are better off with our own blood
    • We should eat for the right composition of our blood
    • We cannot denounce efforts being made by many people to encourage blood donation, and to build blood banks, which, surely, have helped to save lives during emergencies
    • Blood donation should not be seen as a money-making venture, because it can deplete the blood volume, when done over and over, and this may negatively affect blood composition and radiation, and wall up the spirit, making its sojourn on earth this time a waste of valuable time.

    There is no doubt that mankind is still a long, long way aware of getting to the bottom of the mystery of the blood. It is the “river of life”. We all recall in the shedding of blood. Even capital punishment is becoming old-fashioned. Since I came to the recognitions that the spirit makes the blood, I have never ceased to wonder what kind of spirit I must be who chose to make AS genotype, or which type of spirit would make SS and AA or AC genotypes, or which would chose to inhabit an albino earth body, and if it is possible to reverse these conditions, if the spirit changes its inner state, its volition or nature. We live in stupendous times. Knowing people know why sex change is possible, for example. And we know, from revealed knowledge on the face of the earth today, that the master-pieces of mankind are yet to come. Dr. Emerson may have merely peeped into the future of medicine decades ago when he prophesied, rightly, that “the doctor of tomorrow is the nutritionist of today”. Maybe we should now say the doctor of tomorrow is the spiritually knowing doctor of today who is imbued with the knowledge of the mystery of the blood, to cure seemingly intractable health disorders by merely altering radiations of the blood after recomposing the blood. As promised for that time, such would be a CALLED ONE.

  • People with Albinism deserve our support – Obaseki

    The Governor of Edo State, Mr. Godwin Obaseki, has called for support for people with albinism, urging societies that marginalise and stigmatise them to turn a new leaf.

    Obaseki, who made the call in commemoration of the International Albinism Awareness Day, marked on June 13, each year, stressed that it was time for a change of attitude towards people with albinism.

    “With the deluge of information on the internet, the myth and unscientific views many societies hold of people with albinism should have no place in an information age. But unfortunately, some societies still despise and exclude them. This needs to stop,” the governor advised.

    According to Obaseki: “Some of the most hardworking people I have met are people with albinism, despite their peculiar needs, which are often not captured by human resource managers in the private and public sectors.”

    Read Also:Lagos frowns at discrimination against albinos

    He saluted champions of the cause of people with albinism and challenged families, religious institutions, the media, opinion and thought leaders as well as governments at all levels,  to intensify the campaign for the social inclusion of people with albinism.

    The United Nations General Assembly in 2014 adopted a Resolution proclaiming, with effect from 2015, 13 June as International Albinism Awareness Day.

    According to the global body, “The United Nations Human Rights Council adopted a resolution in 2013 calling for the prevention of attacks and discrimination against persons with albinism.

    “Moreover, in response to the call from civil society organisations advocating to consider persons  with albinism as a specific group with particular needs that require special attention, on 26 March 2015, the Council created  the mandate of Independent Expert on the enjoyment of human rights by persons with albinism.

    “In January 2016, Ms. Ikponwosa Ero, United Nations Independent Expert on the Enjoyment of Human Rights of Persons with Albinism submitted her first report on albinism to the UN Human Rights Council. Adding to the information contained in the July 2016 report to the General Assembly, the latest report was presented to the Human Rights Council in 2017 and included a focus on witchcraft as a key root cause of attacks against persons with albinism.”

  • Angels Among Men  explores albinism

    Angels Among Men explores albinism

    Visual artiste and documentary photographer, Damilola Onafuwa, recently partnered with Onome Akinlolu Majaro (OAM) Foundation, for his first solo exhibition of the project, Angels Among Men.

    The exhibition which held at The WhiteSpace, Lagos, opened on Sunday, March 11 at 4pm and ran till Thursday 15th.

    Angels among Men, according to the artiste, is a project that explores the special character of the pale skinned, light haired, rose-coloured or blue eyes humans otherwise known as albinos.

    “It is a long-term photography project exploring the lives of People Living with Albinism in Nigeria and how they thrive in spite of the lack of melanin in their ‘African skin’ and the stereotypes associated with it in most parts of Africa. The prevalence rate of albinism is ranked among the highest in the world with an estimated figure of over two million living in the country,” he explained.

    To the artist, Albinism in Africa carries a negative connotation, and comes with discrimination, killings for rituals, rejection and abductions.

    “While we are not insensitive to these facts, that, in many parts of Africa, people living with albinism are oftentimes faced with these societal issues, this project seeks to digress from that topic, rather expose, educate and inspire truth of the condition, debunk myths as well as celebrate people living with albinism that have, in spite of the negativity associated with the colour of their skin, lived above it and made a life for themselves,” he said.

    He further explains that the title Angels Among Men does not intend to fetishise or refer to people living with albinism as literal angels or as superior, it rather refers to everyone who has chosen to rise and live above stereotypical judgments against people of a different race, colour or gender; people who choose not to be limited by short sighted and shallow standards of men, but treat all with a scale of equality.

  • Albinism: Experts, victims seek end to discrimination

    Albinism: Experts, victims seek end to discrimination

    The large number of Persons with Albinism (PWA) arriving at the Julius Nyerere International Airport in Dar es Salaam, the capital of Tanzania, indicated that something was happening. These were PWA attending the first Pan-African Albinism Conference at Julius Nyerere International Convention Centre (JNICC).

    In attendance with the PWA were members of non-governmental organisations (NGOs), experts and friends from Italy, Japan, Norway, United Kingdom, Neitherlands, United States of America, Turkey, Spain, Belgium, France and Germany.

    The coming of PWA from 29 African countries was amazing. This was because African countries have high record of attacks, including mutilating and killing of PWA. Factors responsible for these attacks include African myths, tradition and capitalism. All the three key factors interact in the context of deeply entrenched witchcraft beliefs. Children made up a large proportion of victims because of the belief that their innocence somehow augments their potency.

    Lies about Albinism in Africa are many. For instance, it is believed that the children’s albinism is always the fault of the mother who had an affair with a European ghost or white man, PWA never die, body parts of PWA taken while alive or dead have magical powers capable of making other people rich and powerful, albinism is a curse, contagious and can heal AIDS, among others.

    To reach across Africa and the world  in an attempt to stimulate a movement that will not discriminate and plant the seed of empowerment for PWA, a non-profit organisation Under the Same Sun (UTSS) organised a Pan-African Albinism Conference (PAAC) at the end of which, the Pan-African Albinism Network (PAAN) was established.

    Driven by the belief that all people have been created in the image of God and thus, have intrinsic value and are worthy of love and support, UTSS began as a collision of the heart, mind and vision of Peter Ash and Vicky Ntetena.

    It was registered in 2008 as a Canadian non-profit organisation and later in 2009, it was re-gistered as International NGO in Tanzania. UTSS promotes, through advocacy and education, the well-being of PWA who, in many parts of the world, are misunderstood, marginalised, attacked and killed because of their genetic condition.

    The purpose of the conference, according to Peter Ash, Founder/Chief Executive Officer of UTSS, was to get PWA leaders in one place, learn from experts and one another as a training channel to take the next step against attacks and discrimination against PWA.

    Welcoming government officials of Tanzania and over 200 participants from about 41 countries at the opening dinner, Ash, a PWA himself, narrated some of his personal experiences of stigma as a young boy when growing up in Canada. He urged PWA to believe in themselves and work hard, saying “you have challenges. It is not easy but you have hope. Today, it’s our time, it’s our day. You must believe yourself as having albinism. Then people will accept you as humankind”.

    With the Theme “Our Goal is to Make Attack, Stigma and Discrimination a Faint Memory,” the four-day conference featured presentation of papers, free eye and skin screening and beach tours among others.

    Training sessions covered topics on documenting attacks, engaging your government successfully, your human rights and preparing your case for court, bring the clinic to your country as well as training teachers and service providers on Albinism.

    Other topics discussed were what is Albinism? Skin cancer: prevention and skin care; Vision-facts and adaptive instruments, Albinism and disability, self-identification, legal framework and reporting to the United Nations.

    Participants learnt about genetics of PWA from renowned world genetics, Dr. Murray Brilliant as well as facts and adaptive vision instrument from a vision optometrist, Dr. Rebecca Kammer who is a specialist on low vision.

    Aside the training sessions, PWAs were all allocated clinic schedule for free skin care and eye test provided by Standing Voice, a charity organisation that promotes the social inclusion and well-being of marginalised groups. It currently tackles the primary dangers facing Tanzania with albinism.

    Standing Voice team has experience of over a decade working with PWA in Africa. While early stages of skin cancer detected were treated using liquid nitrogen applied through Cryo gums, each PWA was given Kilimanjaro sun care cream (Killsun) produced in Tanzania. PWAs that have never treated their eyes did and were also given free eye glasses.

    They also learnt about low vision in detail and the need to visit optamologists who specialised on low vision. During one of the sessions, training leaders and service providers on albinism explained that for children living with albinism to excel in school, they must be well positioned using slanted desk to prevent neck and back pain because they have to bend reading. Experts advised that they should be given reading devices such as telescope to see what the teacher writes on the blackboard and be able to also see the teacher as well as his or her expressions and their colleagues.

    • Lucy Oladipo is a member of a civil society group that advocates for non-discrimination against Albinos